Akhmadinurov Rustem. I'm running to help Sintsova Veronika.
Event: VIII UFI INTERNATIONAL MARATHON 2022
Akhmadinurov Rustem Maratovich - Head of the Regional Executive Committee of the Bashkortostan regional branch of the Party, Deputy Chairman of the State Assembly - Kurultai of the Republic of Bashkortostan, Deputy Secretary of the Bashkortostan regional branch of the Party. Veronica was born with a weight of 2510g. She learned to roll over after 6 months, to sit, at about 1 year 2 months. Now the baby is 1 year 6 months old. She can't walk on her own, has hypotonia, and doesn't balance well. Very poor appetite, hypotrophy of the 2nd degree. Several times she was in hospitals (3 times in the department of neurology and 1 time in the department of gastoenterology). The child was examined "up and down". It was possible to identify: the presence of atrophic areas in the brain, CNS damage, connective tissue dysplasia, tonic disorders, prolapse of the stomach. Treatment by gastroenterologists and neurologists did not help. Many experts suspected genetics in the child. Geneticists looked at the child 4 times, but to make a diagnosis, you need to do a DNA analysis, it is very expensive. Neuromuscular diseases, myodystrophy, microcephaly are in question. We kindly ask you to help raise funds for treatment at the Beloved Baby Habilitation Center so that Veronika can study and develop further. View more >>
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