Valeeva Guzel: I will run in support of butterfly children
Event: Ufa International Marathon -2021
My name is Valeeva Guzel, I work as a project manager of the communication agency "Kultprosvet". I love sports, I am a multiple champion of Europe and Russia in karate. My sporting act in support of children with epidermolysis bullosa from the Breaking Barriers Center. Such children are called “butterfly children”. And if this gives rise to some beautiful associations for you, then this is an illusion. The skin of children is very thin, it bursts all the time, wounds appear. Problems not only with the skin, but also with internal organs. Dressings, pain, restrictions every day. And this is forever. Cure will not work. You can support. Let's do it together. On September 12, I will run 10 km. in support of children with vulnerable skin. The amount of the fee is 10 thousand rubles. We are changing the world! View more >>
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